Some Good News

Emily had her routine visit at the CF Clinic yesterday and it was a great appointment. She gained a little weight and overall they are very pleased. We can cut down her nightly feedings to 3 times a week and hopefully within 6 months we can stop those all together.
Daycare finally saw the light and agreed to let us get a note from her doctor saying that we could dose her enzymes according to the daily menu. Sadly they didn't see the big issue with this until they started potty training her. You see not enough enzumes with too much fat ends up with VERY bad accidents. No wonder it only took then a few days of that to ask what they could do to help. I fully expect to see less accidents now. Oh I'm sure the normal dosage would be fine and dandy if the child ate a normal serving but she's eating 2-3 servings of the main dish for each lunch. They have been given permission to feed her as much as she'll eat and she certainly does that. My girl is an eating machine....her breakfast this past Sunday: 1 cup chocolate pudding,3 whole Grands biscuits and some eggs. She still only tips the scales at 24.7 lbs. I hope with the enzyme changes at daycare more weight will pile on.
Abigail has finished her 1st 6 weeks of Kindergarten - wow that was quick. Granted she did miss 6 days thanks to Ike but nonetheless we will be getting report cards this Friday. She still loves school and her teacher and is making lots of friends - even some 2nd grade friends that ride the bus back to daycare. She's just growing up so fast. She's a smart little girl (what parent doesnt think that right?) but a few nights ago she said something that just left me speechless. Flashback to when Emily was born - Abigail saw her sister the day after she was born and then not again except for in pictures for 4 months. We were very careful of what we said around her and never discussed Emily as being Sick. We were vague with our answers to her questions about why she was there but it was never mentioned in a negative way. Fastforward to this week... Abigail comes over to me and says "Mom, Im so glad Emily didn't die." My reaction was "What do you mean? Die when?" and she simply said.. "you know...in the hospital before you brought her home." I was stunned. I never could imagine she would feel something like that - 1) she was only 2 at the time and 2) that was nothing we talked about even though we knew it was a possibility. That just goes to show you how much young children can pick up on.
Nothing else new going - except that I finally got a new monitor at home and I must say a 22 inch widescreen monitor ROCKS! How did I ever live without it. Maybe I dont need that eye exam this weekend after all.