Next week will be a busy week for us. We have our first appointment at the CF Clinic on Monday - we'll see her pulmonologist, nurse, dietician and social worker. Earlier this week we noticed a large spot sticking out of her abdomen on one of her incision sites and I believe it is a hernia. We have an appointment on Wed with the surgeons to take a look at that. If it is a hernia, we'll be having surgery #4, but hopefully her stay won't be very long at all. Hopefully her surgeon can see her at Texas Children's, if not, we'll have a new surgeon to! We finally get to have another swallow study done next Friday. Maybe she will do better at swallowing liquids and not be dependant on the feeding tube.
Emily is doing very well at home. She's finally reached 12 lbs again. It's taken a while, but I think we have finally gotten into our routine. We have a busy schedule with all of her treatments and medications. I guess I'm just learning to live on very little sleep - there just simply isnt time for that. Hopefully this weekend we'll be able to get her first professional pictures taken - I can't believe she's 5 months old and we've never been able to get any.
Here's a new picture of Abigail and Emily - this was taken last Saturday.
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